91´óÉñ

Children with rare genetic syndromes that affect the heart, like Ellis-Van Creveld syndrome, Marfan syndrome and Turner syndrome, do better with an expert team working together. 91´óÉñ Children’s <a href=\"/content/nemours/us/en/services/pediatric-heart-surgery.html\">cardiothoracic surgery</a> experts are recognized for helping kids from around the world with highly complex genetic conditions.</p>\r\n<p>As part of award-winning heart centers in <a href=\"/content/nemours/us/en/services/delaware-valley-pediatric-cardiac-center.html\">Delaware</a> and <a href=\"/content/nemours/us/en/services/florida-pediatric-cardiac-center.html\">Florida</a>, we work closely with cardiovascular genetics specialists, fetal heart specialists, cardiac anesthesiologists, cardiac critical care intensivists, orthopedics specialists, neurologists, rheumatologists, and more. We perform innovative heart, chest, blood vessel and <a href=\"/content/nemours/us/en/services/airway-tracheal-surgery.html\">airway surgeries</a> to help children with rare syndromes thrive.</p>\r\n<p>We use the latest minimally invasive approaches that help make recovery a little easier. We also team with <a href=\"/content/nemours/us/en/services/cardiac-catheterization.html\">interventional cardiology</a> specialists to perform complex hybrid heart procedures. That means we combine surgery with methods that use catheters, or small thin tubes, threaded through blood vessels.</p>\r\n<p>Your child, and family, gets complete care at 91´óÉñ. In addition to care from nurses and advanced practice providers who are highly skilled in heart conditions, we offer <a href=\"/content/nemours/us/en/services/cardiac-psychology.html\">emotional and neurodevelopmental</a> support, <a href=\"/content/nemours/us/en/services/cardiac-rehabilitation-and-fitness.html\">rehabilitation therapies</a>, <a href=\"/content/nemours/us/en/services/enhanced-recovery-after-surgery.html\">enhanced recovery programs</a> and more.</p>\r\n"}} id=text-d0763c402f class=cmp-text>

Children with rare genetic syndromes that affect the heart, like Ellis-Van Creveld syndrome, Marfan syndrome and Turner syndrome, do better with an expert team working together. 91´óÉñ Children’s cardiothoracic surgery experts are recognized for helping kids from around the world with highly complex genetic conditions.

As part of award-winning heart centers in Delaware and Florida, we work closely with cardiovascular genetics specialists, fetal heart specialists, cardiac anesthesiologists, cardiac critical care intensivists, orthopedics specialists, neurologists, rheumatologists, and more. We perform innovative heart, chest, blood vessel and airway surgeries to help children with rare syndromes thrive.

We use the latest minimally invasive approaches that help make recovery a little easier. We also team with interventional cardiology specialists to perform complex hybrid heart procedures. That means we combine surgery with methods that use catheters, or small thin tubes, threaded through blood vessels.

Your child, and family, gets complete care at 91´óÉñ. In addition to care from nurses and advanced practice providers who are highly skilled in heart conditions, we offer emotional and neurodevelopmental support, rehabilitation therapies, enhanced recovery programs and more.

91´óÉñ cares for nearly all rare and complex genetic syndromes that affect the heart, including:</p>\r\n<ul>\r\n<li>Alagille syndrome</li>\r\n<li>Costello syndrome</li>\r\n<li><a href=\"/content/nemours/us/en/conditions-treatments/down-syndrome.html\">Down syndrome</a></li>\r\n<li><a href=\"/content/nemours/us/en/services/ellis-van-creveld-dysplasia.html\">Ellis-Van Creveld syndrome</a></li>\r\n<li>Turner syndrome</li>\r\n<li>DiGeorge syndrome</li>\r\n<li>Marfan syndrome</li>\r\n<li><a href=\"/content/nemours/us/en/services/morquio-syndrome.html\">Morquio syndrome</a>&nbsp;</li>\r\n<li><a href=\"/content/nemours/us/en/conditions-treatments/muscular-dystrophy.html\">Muscular dystrophy</a></li>\r\n<li>Noonan syndrome</li>\r\n<li>Williams syndrome</li>\r\n<li>VACTERL associations</li>\r\n</ul>\r\n<p>These genetic syndromes can involve <a href=\"/content/nemours/us/en/services/coarctation-of-the-aorta.html\">coarctation of the aorta</a>, <a href=\"/content/nemours/us/en/services/atrial-septal-defect.html\">atrial septal defects</a>, <a href=\"/content/nemours/us/en/services/cardiomyopathy.html\">cardiomyopathy</a>, aortic aneurysm, heart valve problems, tracheal (airway) disorders and other conditions. We know what conditions to look for, and we treat them all.</p>\r\n<p>°Â±ð’r±ð highly skilled in performing complex surgeries, and specialize in:</p>\r\n<ul>\r\n<li><a href=\"/content/nemours/us/en/services/airway-tracheal-surgery.html\">Airway (tracheal) surgery</a></li>\r\n<li><a href=\"/content/nemours/us/en/services/cardiac-catheterization.html\">Interventional catheter-based heart procedures</a></li>\r\n<li><a href=\"/content/nemours/us/en/services/newborn-heart-surgery.html\">Newborn heart surgery</a></li>\r\n<li><a href=\"/content/nemours/us/en/services/mechanical-circulatory-support.html\">Mechanical circulatory support</a></li>\r\n<li>Single ventricle defect surgery</li>\r\n<li>Valve surgery</li>\r\n<li><a href=\"/content/nemours/us/en/services/pediatric-heart-transplant-program.html\">Heart transplant</a> (in Delaware)</li>\r\n</ul>\r\n"}} id=text-727a6a5dc2 class=cmp-text>

91´óÉñ cares for nearly all rare and complex genetic syndromes that affect the heart, including:

• Alagille syndrome
• Costello syndrome
• Down syndrome
• Ellis-Van Creveld syndrome
• Turner syndrome
• DiGeorge syndrome
• Marfan syndrome
• Morquio syndromeÌý
• Muscular dystrophy
• Noonan syndrome
• Williams syndrome
• VACTERL associations

These genetic syndromes can involve coarctation of the aorta, atrial septal defects, cardiomyopathy, aortic aneurysm, heart valve problems, tracheal (airway) disorders and other conditions. We know what conditions to look for, and we treat them all.

°Â±ð’r±ð highly skilled in performing complex surgeries, and specialize in:

• Airway (tracheal) surgery
• Interventional catheter-based heart procedures
• Newborn heart surgery
• Mechanical circulatory support
• Single ventricle defect surgery
• Valve surgery
• Heart transplant (in Delaware)

We have many cardiothoracic surgeons and locations — find the care closest to you.</p>\r\n"}} id=text-3f22345505 class=cmp-text>

We have many cardiothoracic surgeons and locations — find the care closest to you.