91´óÉñ

Dysautonomia (Autonomic Dysfunction)

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Dysautonomia (Autonomic Dysfunction)
Contact Us
Dysautonomia (Autonomic Dysfunction)
Contact Us
Dysautonomia (Autonomic Dysfunction)

Helping Kids Live Active, Healthy Lives

Frequent dizziness, flushing, fast heartbeat upon standing, or near-fainting in a child can be signs of autonomic nervous system dysfunction. Also called “dysautonomia†and “postural orthostatic tachycardia syndrome (POTS),†autonomic dysfunction can also cause symptoms including weakness, headaches, vomiting, bowel changes, difficulty concentrating, increased sweating, sensitivity to heat or cold and more. These can happen alone or together and affect a child’s daily activities.</p>\r\n<p class=\"custom-cursor-default-hover\">The autonomic nervous system controls involuntary body function such as heart rate, blood pressure, temperature and digestion. A problem in the autonomic nervous system is like a software problem in a computer. The &quot;hardware&quot; of the body (the bones, muscles, organs) is healthy. But the &quot;software&quot; (the nerve signals controlling dizziness and pain) is not working like it should.<br>\r\n</p>\r\n<p class=\"custom-cursor-default-hover\">91´óÉñ Children’s dysautonomia team is part of our award-winning care at heart centers in <a href=\"/content/nemours/us/en/services/delaware-valley-pediatric-cardiac-center.html\">Delaware</a> and <a href=\"/content/nemours/us/en/services/florida-pediatric-cardiac-center.html\">Florida</a>. We partner closely with experts in the autonomic nervous system including psychologists, cardiac exercise physicians, rehabilitation therapists, and others to care for your child.<br>\r\n</p>\r\n<p class=\"custom-cursor-default-hover\">We work together to restore your child’s quality of life and get them back to the fun of being a kid.<br>\r\n</p>\r\n"}} id=text-8890254447 class=cmp-text>

Frequent dizziness, flushing, fast heartbeat upon standing, or near-fainting in a child can be signs of autonomic nervous system dysfunction. Also called “dysautonomia†and “postural orthostatic tachycardia syndrome (POTS),†autonomic dysfunction can also cause symptoms including weakness, headaches, vomiting, bowel changes, difficulty concentrating, increased sweating, sensitivity to heat or cold and more. These can happen alone or together and affect a child’s daily activities.

The autonomic nervous system controls involuntary body function such as heart rate, blood pressure, temperature and digestion. A problem in the autonomic nervous system is like a software problem in a computer. The "hardware" of the body (the bones, muscles, organs) is healthy. But the "software" (the nerve signals controlling dizziness and pain) is not working like it should.

91´óÉñ Children’s dysautonomia team is part of our award-winning care at heart centers in Delaware and Florida. We partner closely with experts in the autonomic nervous system including psychologists, cardiac exercise physicians, rehabilitation therapists, and others to care for your child.

We work together to restore your child’s quality of life and get them back to the fun of being a kid.

Our Services

Mom
Because dysautonomia is so complex, your child may have different experts working to strengthen them physically and mentally.</p>\r\n<p class=\"custom-cursor-default-hover\">It can take time to figure out the best treatments. We use a combination of evidence-based therapies to help your child feel better. These may include physical activity and movement, behavioral health therapies, lifestyle changes and, if needed, medicine.<br>\r\n</p>\r\n"}} id=text-bf14c48735 class=cmp-text>

Because dysautonomia is so complex, your child may have different experts working to strengthen them physically and mentally.

It can take time to figure out the best treatments. We use a combination of evidence-based therapies to help your child feel better. These may include physical activity and movement, behavioral health therapies, lifestyle changes and, if needed, medicine.

What to Expect

<b class=\"custom-cursor-default-hover\">Comprehensive Heart Evaluation</b></p>\r\n<p class=\"custom-cursor-default-hover\">The first step in understanding your child's condition is to ensure that their heart is functioning and working as it should.&nbsp;<br>\r\n</p>\r\n<p class=\"custom-cursor-default-hover\">We tailor testing to your child’s specific symptoms. Our <a href=\"/content/nemours/us/en/services/pediatric-cardiology.html\">cardiology</a> team may perform a variety of tests such as:<br>\r\n</p>\r\n<ul class=\"custom-cursor-default-hover\">\r\n<li class=\"custom-cursor-default-hover\"><b>Vital sign measurements</b> like heart rate, blood pressure, temperature, oxygen levels, breathing rate and others<br>\r\n</li>\r\n<li class=\"custom-cursor-default-hover\"><b>Active standing test</b> to assess heart rate, blood pressure and symptoms during position changes&nbsp;</li>\r\n<li class=\"custom-cursor-default-hover\"><b>Electrocardiogram (ECG) </b>to measure heart rhythm</li>\r\n<li class=\"custom-cursor-default-hover\"><b>Echocardiogram</b>, or ultrasound of the heart, that use soundwaves to look at the heart’s function and structure</li>\r\n<li class=\"custom-cursor-default-hover\"><a href=\"/content/nemours/us/en/services/cardiac-exercise-program.html\">Exercise stress tests</a> to see how the heart responds during physical activity</li>\r\n<li class=\"custom-cursor-default-hover\"><b>Other tests as needed</b>, such as tilt-table tests, 24-hour ECG heart monitoring (Holter monitor), QSWEAT (to assess autonomic nerve function), and referral to other specialists</li>\r\n</ul>\r\n"}} id=text-a23af95b2a class=cmp-text>

Comprehensive Heart Evaluation

The first step in understanding your child's condition is to ensure that their heart is functioning and working as it should. 

We tailor testing to your child’s specific symptoms. Our cardiology team may perform a variety of tests such as:

  • Vital sign measurements like heart rate, blood pressure, temperature, oxygen levels, breathing rate and others
  • Active standing test to assess heart rate, blood pressure and symptoms during position changes 
  • Electrocardiogram (ECG) to measure heart rhythm
  • Echocardiogram, or ultrasound of the heart, that use soundwaves to look at the heart’s function and structure
  • Exercise stress tests to see how the heart responds during physical activity
  • Other tests as needed, such as tilt-table tests, 24-hour ECG heart monitoring (Holter monitor), QSWEAT (to assess autonomic nerve function), and referral to other specialists

We may use different therapies, including:</p>\r\n<p><b>Physical Activity</b></p>\r\n<p>Physical activity is vital to autonomic dysfunction treatment success. However, children often reduce activity because of their symptoms. It’s important to slowly and safely introduce exercise to help your child get back to doing what they love. We may recommend:</p>\r\n<ul>\r\n<li><a href=\"/content/nemours/us/en/services/cardiac-exercise-program.html\"><b>Exercise programs</b></a> developed just for your child and their individual needs, such as our <a href=\"/content/dam/nemours/nemours-org/en/documents/autonomic-dysfunction-exercise-program.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">Autonomic Dysfunction Exercise Program</a></li>\r\n<li><b>Rehabilitation therapies</b>, like <a href=\"/content/nemours/us/en/services/pediatric-physical-therapy.html\">physical</a> and/or <a href=\"/content/nemours/us/en/services/pediatric-occupational-therapy.html\">occupational therapy</a> to build endurance, balance and strength</li>\r\n<li><a href=\"/content/nemours/us/en/services/pediatric-integrative-medicine.html\"><b>Integrative therapies</b></a> like yoga to gently stretch out tight muscles and strengthen weak muscles</li>\r\n</ul>\r\n<p><b>Cognitive Behavioral Therapy</b></p>\r\n<p>Our <a href=\"/content/nemours/us/en/services/child-psychology.html\">child psychology</a> experts use cognitive behavioral therapy (CBT) to change thinking patterns (cognition) and behaviors (lifestyle habits and physical activity).</p>\r\n<p>Thoughts, beliefs, memories, attention and emotions — as well as environmental, social, cultural and family factors — can play roles in pain and symptoms. CBT helps teach thoughts, skills and behaviors that may reduce the impact symptoms have on your child’s everyday life.</p>\r\n<p><b>Lifestyle Changes</b></p>\r\n<p>Lifestyle changes refer to things we can do in our daily life to improve symptoms. For dysautonomia, we may suggest:</p>\r\n<ul>\r\n<li><b>Making <a href=\"/content/nemours/us/en/services/nutrition.html\"><b>nutrition</b></a> changes,</b> like increasing fluid and salt intake, improving diet or eating more throughout the day</li>\r\n<li><b>Enhancing wellness</b> with <a href=\"/content/nemours/us/en/services/pediatric-integrative-medicine.html\">integrative therapies</a> like healing touch, guided imagery and massage</li>\r\n<li><b>Encouraging other healthy habits</b> like improving sleep, taking breaks, managing stress and more</li>\r\n</ul>\r\n<p><b>Referral to Other 91´óÉñ Specialists</b></p>\r\n<p>Patients with POTS or other forms of cardiovascular autonomic dysfunction may have symptoms that need &nbsp;further evaluation and care. Depending on their symptoms, we may refer your child to specialists in <a href=\"/content/nemours/us/en/services/pediatric-pain-management.html\">pain management,</a> dysmotility <a href=\"/content/nemours/us/en/services/pediatric-gastroenterology.html\">gastroenterology</a>, autonomic <a href=\"/content/nemours/us/en/services/pediatric-urology.html\">urology</a>, <a href=\"/content/nemours/us/en/services/pediatric-neurology.html\">neurology</a> and others.</p>\r\n"}} id=text-89e3380700 class=cmp-text>

We may use different therapies, including:

Physical Activity

Physical activity is vital to autonomic dysfunction treatment success. However, children often reduce activity because of their symptoms. It’s important to slowly and safely introduce exercise to help your child get back to doing what they love. We may recommend:

Cognitive Behavioral Therapy

Our child psychology experts use cognitive behavioral therapy (CBT) to change thinking patterns (cognition) and behaviors (lifestyle habits and physical activity).

Thoughts, beliefs, memories, attention and emotions — as well as environmental, social, cultural and family factors — can play roles in pain and symptoms. CBT helps teach thoughts, skills and behaviors that may reduce the impact symptoms have on your child’s everyday life.

Lifestyle Changes

Lifestyle changes refer to things we can do in our daily life to improve symptoms. For dysautonomia, we may suggest:

  • Making nutrition changes, like increasing fluid and salt intake, improving diet or eating more throughout the day
  • Enhancing wellness with integrative therapies like healing touch, guided imagery and massage
  • Encouraging other healthy habits like improving sleep, taking breaks, managing stress and more

Referral to Other 91´óÉñ Specialists

Patients with POTS or other forms of cardiovascular autonomic dysfunction may have symptoms that need  further evaluation and care. Depending on their symptoms, we may refer your child to specialists in pain management, dysmotility gastroenterology, autonomic urology, neurology and others.

Two Leading Pediatric Heart Centers

Our heart centers offer highly advanced, integrated care just for kids and young adults with congenital heart disease. Learn about our focused programs, innovative research and exceptional outcomes.&nbsp;&nbsp;</p>\r\n"}} id=text-827bdb8f13 class=cmp-text>

Our heart centers offer highly advanced, integrated care just for kids and young adults with congenital heart disease. Learn about our focused programs, innovative research and exceptional outcomes.  

Advanced Screening, Treatment and Lifestyle Support

Our team knows how dysautonomia can affect a child. We listen and provide integrated treatments that support your child, physically, emotionally and socially.&nbsp;</p>\r\n"}} id=text-de3ab2f863 class=cmp-text>

Our team knows how dysautonomia can affect a child. We listen and provide integrated treatments that support your child, physically, emotionally and socially. 

Mom
Dysautonomia is <b>hard to diagnose. We help you find answers and build a treatment program</b> that fits in your family’s life.</p>\r\n"}} id=text-d1b63dd1e1 class=cmp-text>

Dysautonomia is hard to diagnose. We help you find answers and build a treatment program that fits in your family’s life.


°Â±ð’v±ð <b>cared for kids with POTS for many years. Families throughout the Southeast come here</b> for our expertise.&nbsp;</p>\r\n"}} id=text-b594e0948c class=cmp-text>

°Â±ð’v±ð cared for kids with POTS for many years. Families throughout the Southeast come here for our expertise. 


Our <b>team provides seamless care with different specialists your child may need</b>, like gastroenterology, urology and neurology.</p>\r\n"}} id=text-16b148183a class=cmp-text>

Our team provides seamless care with different specialists your child may need, like gastroenterology, urology and neurology.


We're <b>researching autonomic dysfunction and sharing our knowlege</b> so that kids everywhere can benefit.</p>\r\n"}} id=text-21aab9e945 class=cmp-text>

We're researching autonomic dysfunction and sharing our knowlege so that kids everywhere can benefit.

Advanced Screening, Treatment and Lifestyle Support

Our team knows how dysautonomia can affect a child. We listen and provide integrated treatments that support your child, physically, emotionally and socially. </p>\r\n"}} id=text-a6e201f706 class=cmp-text>

Our team knows how dysautonomia can affect a child. We listen and provide integrated treatments that support your child, physically, emotionally and socially. 

Mom
Dysautonomia is<b> hard to diagnose. We help you find answers and build a treatment program</b> that fits in your family’s life.</p>\r\n"}} id=text-1d365bb6b8 class=cmp-text>

Dysautonomia is hard to diagnose. We help you find answers and build a treatment program that fits in your family’s life.


We team <b>with our </b><a href=\"/content/nemours/us/en/services/pediatric-integrative-medicine.html\"><b>Integrated Pain and Wellness Program</b></a><b> that offers both medical and holistic therapies</b>, like massage, yoga and healing touch, just for kids.&nbsp;</p>\r\n"}} id=text-17927f4b38 class=cmp-text>

We team with our Integrated Pain and Wellness Program that offers both medical and holistic therapies, like massage, yoga and healing touch, just for kids. 


Our team <b>provides seamless care with different specialists and programs </b>your child may need.</p>\r\n"}} id=text-5447b74865 class=cmp-text>

Our team provides seamless care with different specialists and programs your child may need.


°Â±ð’r±ð <b>experts in pediatric heart health. </b>If there is a problem with your child’s heart, we work to diagnose it quickly and start treatment right away.</p>\r\n"}} id=text-b3d5f7cde4 class=cmp-text>

°Â±ð’r±ð experts in pediatric heart health. If there is a problem with your child’s heart, we work to diagnose it quickly and start treatment right away.

Meet the Team

91´óÉñ dysautonomia teams are experienced and focused on your child's healthiest future. Meet them now.&nbsp;</p>\r\n"}} id=text-5d2712dc59 class=cmp-text>

91´óÉñ dysautonomia teams are experienced and focused on your child's healthiest future. Meet them now. 

Close-up
Convenient Follow-Up Appointments by Video</h2>\r\n"}} id=text-562114abbf class=cmp-text>

Convenient Follow-Up Appointments by Video

We offer follow-up appointments through scheduled, live video visits. You can avoid waiting rooms and save travel time. Ask your doctor if this is an option for your family.</p>\r\n"}} id=text-43a3165bd7 class=cmp-text>

We offer follow-up appointments through scheduled, live video visits. You can avoid waiting rooms and save travel time. Ask your doctor if this is an option for your family.