Our Patients’ Stories of Triumph
Inspiring Journeys of Courage, Care & RecoveryÌý
Every day, we witness inspiring acts of courage and determination. The kids we treat face challenges with grace, supported by their families and our dedicated team of specialists.Ìý
We share these stories to showcase our patients’ remarkable journeys from diagnosis through recovery. These stories highlight their strength and spirit and provide insight into the bonds we form.Ìý
This is a small sample of the thousands of children we see every year. You can read more about our orthopedic patients through theÌý.Ìý
Finding the Right Skeletal Dysplasia Care
Baby boy Walker entered the world and was placed in hospice care. The family prayed and waited, expecting their baby to pass within the hour. But it wasn’t to be. Miraculously, five days later Walker went home and, ever so slowly, began to thrive. Surprised, but elated, Walker’s parents had lots of questions and no answers. Until his family found 91´óÉñ.Ìý
Meet Our Patients
We love watching our patients and families grow healthy and strong, and overcome. Meet our patients.
Daniel | An active boy who throws the ceremonial first pitch at a Philadelphia Phillies game.
Melissa | A young adult who has enjoyed the comfortable familiarity with her doctor, for more than 20 years.
| A smart, lively second-grader who educates her peers and advocates for kids just like her.
| A child who lovingly calls her orthopedic surgeon "Dr. Straightener" because he made her legs straighter.
| A determined teen who underwent a double knee osteotomy, a procedure not many surgeons would do.
| A determined young lady who puts in the hard work to exceed milestones.
Children with limb differences can and do thrive with the right care and support. See how we've helped kids soar.Ìý
Ìý´¥ÌýA young boy who's ready to get back to sports after his limb-lengthening surgery.Ìý
Ìý´¥ AÌýteenager who made a tough amputation decision that changed her life, for the better.
Osteogenesis imperfecta affects children in different ways. We guide families through the journey, which often starts well before birth. Read more.Ìý
Isaiah | A baby who, against all odds, continues to grow and meet important development milestones.Ìý
| A renowned singer, songwriter, rapper and inspirational speaker who doesn't let his OI define him.Ìý
| A kindergartener whose family has high hopes for her future and clinical trial success.
Ìý´¥ A family's surprise and blessing who is thriving and loving life with his three siblings.
Ìý´¥ A tough little fighter whose been through a lot in his short life, yet continues to smile, and thrive.Ìý
Ìý´¥ A fun loving boy who has an infectious laugh and a determination to live life to the fullest.Ìý
Ìý´¥ Kids whose moms forged a bond that is life changing.Ìý
Kids with scoliosis and spine conditions reach their full potential at 91´óÉñ. Meet some of our patients.
Ìý´¥ÌýAn active teen with a love for surfing, skiing, and running, and doesn't let scoliosis slow her down.
| A teen who had a complicated spine surgery that maintained the correction of her spine curvature while allowing her spine to grow.
| A young athlete shares, in her own words, her amazing journey and return to sports after spinal fusion surgery.
| A determined teen who's back dancing the lead after a surgery to correct her curved spine.Ìý
Ìý´¥ A young man who's been with us since infancy and enjoys his extended 91´óÉñ family.
Lauren | A spirited cheerleader who suffered a spinal fracture and never lost hope for recovery.
CarleyÌý´¥ A teen whose recovery after surgery for spondylolisthesis was tough, but not too tough for her.
Ìý´¥ÌýA courageous teen whose journey with severe kyphoscoliosis led him across the globe to 91´óÉñ.Ìý
AJÌý´¥ An athlete with grit and determination pledged toÌýdo whatever he had to do to recover.
JamesÌý´¥ÌýA competitive swimmer who spent more than eight years of his life battling scoliosis, and won.
Kids with skeletal dysplasia often need care from a whole team of experts. With the right treatments and support, they can live life to their highest potential. Meet some of our patients.
Walker | A newborn not expected to live, but through the power of prayer not only survived, but thrived.
Mackenzie | An exceptional young girl who sits tall in the saddle and helps her family raise and train horses.
| A baby whose rare condition brought him to 91´óÉñ for a complicated surgery, but gets care closer to home because of teamwork and partnerships with community providers.
| A newborn brought into the world at our children's hospital in Delaware receives the highest level of care at birth, and beyond.
| A tenacious girl whose family travels from Nevada to get expert care from a team with experience in a rare form of skeletal dysplasia.
| A strong, resilient little boyÌýwhose many surgeries and successful recoveries brought him closer to brighter future.
| A little boy who loves making his family laugh thrives with support from his family and his entire 91´óÉñ team.
| A fighter since the day she was born, this baby girl shares a special bond with her parents, who also have skeletal dysplasia.
| A sweet, kind boy with Morquio syndrome has a big heart and a positive outlook even in times of uncertainty thanks to his family and care team.
| A young adult with Morquio syndrome recalls her journey at 91´óÉñ, proving that kids can live life to the fullest.
| A young girl comes from Pakistan to get the highest level of expertise available for her rare condition at 91´óÉñ.
When a student athlete gets injured, their competitive spirit kicks in and helps them overcome. See how we helped.Ìý
Ìý´¥ÌýA high school wrestler with a shoulder labral tear exhibits resilience and determination on her journey back to the mat.
Ìý´¥ A gymnast with a dislocated knee didn't let surgery keep him from competing to make it to a national competition.Ìý
Ìý´¥ A middle-schooler whose love for baseball kept him committed to rehabilitation and full recovery from little league elbow.Ìý
|ÌýAn adventurous young man who triumphed after a minibike accident left him severely injured.Ìý
|ÌýA two-sport varsity high school athlete didn’t let an injury keep her down for long.
|ÌýA young athlete whose journey through ACL tears in both knees tested her strength and perseverance.
The Power of Our OI Community
Laura, Jess, Ginny, and Jasmine are remarkable mothers whose paths crossed through their children’s osteogenesis imperfecta diagnoses. Through shared experiences and care teams, this group of women have formed lasting friendships.ÌýThrough the highs and lows of parenthood they found strength in each other. They discovered a community of parents within 91´óÉñ that evolved into a cherished source of support and encouragement.Ìý
Progress Thanks to 91´óÉñ Expertise
Aidan is an 18-year-old musician who found his passion for music during his medical journey.ÌýAs an active 10-year-old, Aidan suffered a snowboarding accident where he was diagnosed with a bone contusion in his left leg. Years later,Ìýafter treatment was over, the pain continued. He was still using a wheelchair to get around. It wasn't until Aiden was referred to 91´óÉñ did his life change dramatically. For the better.
"We wanted the best orthopedic surgeons, but also the best in pediatric patient care. We knew we'd get both at 91´óÉñ."
"Gymnastics is my LIFE! I didn’t realize how much gymnastics meant to me until it was taken away."Ìý
"Having strong connections with my doctors has been the key to both my decision to amputate and my mental health."
- Carousel Slide 1
- Carousel Slide 2
- Carousel Slide 3