91大神

Neuromuscular Program

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Neuromuscular Care
Contact Us
Neuromuscular Care
Contact Us
Neuromuscular Care

Helping Kids With Neuromuscular Conditions Live Their Best Lives

91大神 Children鈥檚 neuromuscular specialists empower children to live their best lives. Our program, certified by the Muscular Dystrophy Association (MDA), offers leading-edge treatments and complete care for kids and families.</p>\r\n<p>Your child鈥檚 care is led by experts who are part of leading pediatric neuroscience centers in <a href=\"/content/nemours/us/en/services/delaware-valley-neuroscience-center.html\">Delaware</a> and <a href=\"/content/nemours/us/en/services/central-florida-neuroscience-center.html\">Florida</a>. We partner with recognized orthopedic specialists, cardiologists, pulmonologists, physical medicine doctors and endocrinologists to care for children with complex conditions. Our team also conducts neuromuscular research. We develop life-changing devices that help kids move and treatments that help them live longer, and better.</p>\r\n<p>Our neuromuscular team specializes in a wide range of conditions, from Duchenne muscular dystrophy and spinal muscular atrophy (SMA) to various neuropathies and myopathies. We offer advanced therapies, including gene therapy and treatments for rare diseases, rehabilitation, nutrition counseling and more to help kids function their very best.</p>\r\n<p>At 91大神, you have access to all the support and care your family needs in one place.</p>\r\n"}} id=text-1ecd524fed class=cmp-text>

91大神 Children鈥檚 neuromuscular specialists empower children to live their best lives. Our program, certified by the Muscular Dystrophy Association (MDA), offers leading-edge treatments and complete care for kids and families.

Your child鈥檚 care is led by experts who are part of leading pediatric neuroscience centers in Delaware and Florida. We partner with recognized orthopedic specialists, cardiologists, pulmonologists, physical medicine doctors and endocrinologists to care for children with complex conditions. Our team also conducts neuromuscular research. We develop life-changing devices that help kids move and treatments that help them live longer, and better.

Our neuromuscular team specializes in a wide range of conditions, from Duchenne muscular dystrophy and spinal muscular atrophy (SMA) to various neuropathies and myopathies. We offer advanced therapies, including gene therapy and treatments for rare diseases, rehabilitation, nutrition counseling and more to help kids function their very best.

At 91大神, you have access to all the support and care your family needs in one place.

Three Leading Pediatric Neuroscience Centers

Our neuroscience centers provide highly advanced, integrated medical services just for kids and teens with neurologic and neuromuscular conditions. Learn about our focused programs, advanced research, and leading care.</p>\r\n"}} id=text-e588e17696 class=cmp-text>

Our neuroscience centers provide highly advanced, integrated medical services just for kids and teens with neurologic and neuromuscular conditions. Learn about our focused programs, advanced research, and leading care.

Find Care at 91大神

We have many pediatric neurologists and locations&nbsp;鈥 find the care closest to you:</p>\r\n"}} id=text-d1d79b26ea class=cmp-text>

We have many pediatric neurologists and locations听鈥 find the care closest to you:

Leading Neuromuscular Care in Florida听

We want coming to 91大神 to be a bright start in your child鈥檚 day. Our team personalizes care, touching nearly every aspect of your child鈥檚 life.</p>\r\n"}} id=text-0a711fa561 class=cmp-text>

We want coming to 91大神 to be a bright start in your child鈥檚 day. Our team personalizes care, touching nearly every aspect of your child鈥檚 life.

We provide <b>complete care at state-of-the art facilities </b>at 91大神 Children's Hospital, Florida in Orlando. We鈥檙e here from diagnosis, treatment and beyond.</p>\r\n"}} id=text-7a1307fb0d class=cmp-text>

We provide complete care at state-of-the art facilities at 91大神 Children's Hospital, Florida in Orlando. We鈥檙e here from diagnosis, treatment and beyond.


We鈥檙e the <b>only MDA-approved program of its kind in Central Florida.</b></p>\r\n"}} id=text-4ead973040 class=cmp-text>

We鈥檙e the only MDA-approved program of its kind in Central Florida.


91大神 is <b>doing important research, studying neuromuscular disorders</b> <b>and offering access to clinical trials </b>and treatments you can鈥檛 get everywhere.</p>\r\n"}} id=text-4eeb59f291 class=cmp-text>

91大神 is doing important research, studying neuromuscular disorders and offering access to clinical trials and treatments you can鈥檛 get everywhere.


We offer the <b>newest treatments for SMA</b>, which have greatly improved the quality of life for kids.</p>\r\n"}} id=text-6f5b9f83b4 class=cmp-text>

We offer the newest treatments for SMA, which have greatly improved the quality of life for kids.


91大神 <b>provides everything your child needs within the same system. You get expert care and support</b> in one place.</p>\r\n"}} id=text-ef43161f5d class=cmp-text>

91大神 provides everything your child needs within the same system. You get expert care and support in one place.

Neuro

Meet Our Neuromuscular Specialists in Central Florida

Our specialists are at the forefront of their fields. They work tirelessly to improve the quality of life for children and teens with neuromuscular disorders.</p>\r\n"}} id=text-fd08256c8c class=cmp-text>

Our specialists are at the forefront of their fields. They work tirelessly to improve the quality of life for children and teens with neuromuscular disorders.

Leading Neuromuscular Care in the Delaware Valley

We want coming to 91大神 to be a bright start in your child鈥檚 day. Our team personalizes care, touching nearly every aspect of your child鈥檚 life.</p>\r\n"}} id=text-9a00214793 class=cmp-text>

We want coming to 91大神 to be a bright start in your child鈥檚 day. Our team personalizes care, touching nearly every aspect of your child鈥檚 life.

We make care convenient. You can see us at our&nbsp;<b>91大神 Children鈥檚 Hospital, Delaware,&nbsp;</b>and several specialty care&nbsp;locations throughout the region.</p>\r\n"}} id=text-bc369ce61e class=cmp-text>

We make care convenient. You can see us at our听91大神 Children鈥檚 Hospital, Delaware,听and several specialty care听locations throughout the region.


We鈥檙e&nbsp;<b>doing important research, studying neuromuscular disorders</b>&nbsp;<b>and offering access to clinical trials</b>&nbsp;and treatments you can鈥檛 get everywhere.&nbsp;</p>\r\n"}} id=text-584f6a2685 class=cmp-text>

奥别鈥檙别听doing important research, studying neuromuscular disordersand offering access to clinical trials听and treatments you can鈥檛 get everywhere.听


We鈥檙e the&nbsp;<b>only MDA-approved program of its kind in the state of Delaware.</b>&nbsp;We鈥檙e also Parent Project Muscular Dystrophy (PPMD) certified as a Duchenne Care Center.</p>\r\n"}} id=text-e0c72ed44b class=cmp-text>

We鈥檙e the听only MDA-approved program of its kind in the state of Delaware.听We鈥檙e also Parent Project Muscular Dystrophy (PPMD) certified as a Duchenne Care Center.


We offer the&nbsp;<b>newest treatments for SMA</b>, which have greatly improved the quality of life for kids.</p>\r\n"}} id=text-b963fb81d9 class=cmp-text>

We offer the听newest treatments for SMA, which have greatly improved the quality of life for kids.

Two

Meet Our Neuromuscular Specialists in the Delaware Valley

Our specialists are at the forefront of their fields. They work tirelessly to improve the quality of life for children and teens with neuromuscular disorders.</p>\r\n"}} id=text-99bfd0f12f class=cmp-text>

Our specialists are at the forefront of their fields. They work tirelessly to improve the quality of life for children and teens with neuromuscular disorders.

Leading Neuromuscular Care for Kids

We want coming to 91大神 to be a bright start in your child鈥檚 day. Our team personalizes care, touching nearly every aspect of your child鈥檚 life.</p>\r\n"}} id=text-5ebc70a8b5 class=cmp-text>

We want coming to 91大神 to be a bright start in your child鈥檚 day. Our team personalizes care, touching nearly every aspect of your child鈥檚 life.

91大神 neurologists <b>care for kids with neuromuscular disorders at convenient locations </b>throughout the Delaware Valley and Florida.</p>\r\n"}} id=text-244de89f04 class=cmp-text>

91大神 neurologists care for kids with neuromuscular disorders at convenient locations throughout the Delaware Valley and Florida.


Our neuromuscular programs are the <b>only MDA-approved programs of their kind in the state of Delaware and in Central Florida.</b></p>\r\n"}} id=text-d8ca5c145d class=cmp-text>

Our neuromuscular programs are the only MDA-approved programs of their kind in the state of Delaware and in Central Florida.


91大神 is <b>doing important research, studying neuromuscular disorders</b> <b>and offering access to clinical trials</b> and treatments you can鈥檛 get everywhere.</p>\r\n"}} id=text-e78c852532 class=cmp-text>

91大神 is doing important research, studying neuromuscular disorders and offering access to clinical trials and treatments you can鈥檛 get everywhere.


We offer the <b>newest treatments for SMA</b>, which have greatly improved the quality of life for kids.</p>\r\n"}} id=text-407990f4c9 class=cmp-text>

We offer the newest treatments for SMA, which have greatly improved the quality of life for kids.


91大神 <b>offers everything your child needs within the same system. </b>You get expert care and support in one place.</p>\r\n"}} id=text-44ea77e2ac class=cmp-text>

91大神 offers everything your child needs within the same system. You get expert care and support in one place.

Two

Meet Our Neuromuscular Specialists

Our specialists are at the forefront of their fields. They work tirelessly to improve the quality of life for children and teens with neuromuscular disorders.</p>\r\n"}} id=text-98e20ba230 class=cmp-text>

Our specialists are at the forefront of their fields. They work tirelessly to improve the quality of life for children and teens with neuromuscular disorders.

Groundbreaking Duchenne Muscular Dystrophy Treatment in Florida

91大神 Children鈥檚 Hospital, Florida is one of just three hospitals in the state to offer the revolutionary ELEVIDYS gene therapy for Duchenne muscular dystrophy. This therapy represents a ray of hope for our patient Jaxson and his family, and offers a brighter future for kids with this disease.</p>\r\n"}} id=text-8c7940fd29 class=cmp-text>

91大神 Children鈥檚 Hospital, Florida is one of just three hospitals in the state to offer the revolutionary ELEVIDYS gene therapy for Duchenne muscular dystrophy. This therapy represents a ray of hope for our patient Jaxson and his family, and offers a brighter future for kids with this disease.

Programs & Services

Neuromuscular conditions range in type and severity. We work to understand your child鈥檚 signs and symptoms, like muscle weakness or developmental delays.</p>\r\n<p>Using a family-centered approach, we care for kids inside the landscape of family, seeing the whole picture. We know that these conditions have psychological and social impacts at both home and school. We create a care plan that considers every part of your child鈥檚 life.</p>\r\n<p>We offer many services for&nbsp;kids and teens living with neuromuscular conditions.</p>\r\n<ul>\r\n<li><b>Convenient appointments with multiple providers</b>, often on the same day.</li>\r\n<li><b>Advanced diagnostics</b>, including the latest imaging and muscle and nerve tests in state-of-the-art, kid-friendly facilities.</li>\r\n<li><a href=\"/content/nemours/us/en/services/gait-and-motion-analysis.html\"><b>Gait and motion analysis testing</b></a> in Delaware Valley, the first pediatric lab of its kind.</li>\r\n<li><b>Multispecialty care </b>with <a href=\"/content/nemours/us/en/services/pediatric-orthopedics.html\">orthopedic</a> and <a href=\"/content/nemours/us/en/services/cardiac-neuromuscular-disorders.html\">cardiology</a> experts who have expertise working with kids with neuromuscular conditions.</li>\r\n<li><b><a href=\"/content/nemours/us/en/services/pediatric-genetics.other\">Genetic counseling</a> services </b>to help families understand the role genetics can play in certain neuromuscular diseases.</li>\r\n<li><b><a href=\"/content/nemours/us/en/services/cardiac-neuromuscular-disorders.html\">Assistive technology</a> services,</b> which includes tools and devices that can help kids learn to speak, write, learn or move better.</li>\r\n<li><b>Onsite <a href=\"/content/nemours/us/en/services/pediatric-orthotics.other\">orthotics labs</a></b> for convenient, customized mobility solutions.</li>\r\n<li><a href=\"/content/nemours/us/en/services/wheelchair-clinic.html\"><b>Seating and mobility equipment</b></a><b> and training</b>, where kids and families can find the right system and learn how to use it.</li>\r\n<li><b><a href=\"/content/nemours/us/en/services/pediatric-pain-management.html\">Pain management</a> and <a href=\"/content/nemours/us/en/services/palliative-care.html\">palliative care</a> services</b> from providers who know how neuromuscular disorders can affect a child.</li>\r\n<li><a href=\"/content/nemours/us/en/services/pediatric-rehabilitative-medicine.html\">Physical and occupational therapy</a> <b>programs</b> at convenient rehabilitation facilities.</li>\r\n<li><a href=\"/content/nemours/us/en/services/support.html\">Support and services</a> <b>from a team</b> of care coordinators, social workers, Child Life specialists and others who help your family navigate care, cope with a diagnosis and find resources in your community.</li>\r\n<li><a href=\"/content/nemours/us/en/services/transition-of-care.html\">Transition of care assistance</a>, helping your teen find <b>seamless neuromuscular care</b> with adult specialists.</li>\r\n</ul>\r\n"}} id=text-77c45ee319 class=cmp-text>

Neuromuscular conditions range in type and severity. We work to understand your child鈥檚 signs and symptoms, like muscle weakness or developmental delays.

Using a family-centered approach, we care for kids inside the landscape of family, seeing the whole picture. We know that these conditions have psychological and social impacts at both home and school. We create a care plan that considers every part of your child鈥檚 life.

We offer many services for听kids and teens living with neuromuscular conditions.

  • Convenient appointments with multiple providers, often on the same day.
  • Advanced diagnostics, including the latest imaging and muscle and nerve tests in state-of-the-art, kid-friendly facilities.
  • Gait and motion analysis testing in Delaware Valley, the first pediatric lab of its kind.
  • Multispecialty care with orthopedic and cardiology experts who have expertise working with kids with neuromuscular conditions.
  • Genetic counseling services to help families understand the role genetics can play in certain neuromuscular diseases.
  • Assistive technology services, which includes tools and devices that can help kids learn to speak, write, learn or move better.
  • Onsite orthotics labs for convenient, customized mobility solutions.
  • Seating and mobility equipment and training, where kids and families can find the right system and learn how to use it.
  • Pain management and palliative care services from providers who know how neuromuscular disorders can affect a child.
  • Physical and occupational therapy programs at convenient rehabilitation facilities.
  • Support and services from a team of care coordinators, social workers, Child Life specialists and others who help your family navigate care, cope with a diagnosis and find resources in your community.
  • Transition of care assistance, helping your teen find seamless neuromuscular care with adult specialists.
Conditions & Treatments</h2>"}} id=text-c0d3503cfa class=cmp-text>

Conditions & Treatments

We see kids and teens for many problems that involve low muscle tone or muscle weakness. Below are some of the most common conditions we see. Don鈥檛 see a condition listed? Call us.</p>\r\n"}} id=text-93256d98c0 class=cmp-text>

We see kids and teens for many problems that involve low muscle tone or muscle weakness. Below are some of the most common conditions we see. Don鈥檛 see a condition listed? Call us.

Congenital Myopathies

Duchenne Muscular Dystrophy

Facioscapulohumeral Muscular Dystrophy (FSHD)

Limb Girdle Muscular Dystrophies

Myasthenia Gravis

Peripheral Neuropathy

Pompe Disease

Spinal Muscular Atrophy (SMA)

Muscular Dystrophy

Peripheral Neuropathies

Charcot-Marie-Tooth Disease

Metabolic Myopathies

Inflammatory Myopathies

Motor Neuron Diseases

Participate in a Clinical Trial</h2>\r\n"}} id=text-76c7cb61a5 class=cmp-text>

Participate in a Clinical Trial

The neuromuscular research team at the Neuroscience Center in Delaware Valley is partnering with the Raphael Center for Neurorestoration at Thomas Jefferson University to develop the NuroSleeve. This wearable device can help children with muscular dystrophy and other conditions that cause arm weakness or paralysis. Learn more about the NuroSleeve trial.</p>\r\n"}} id=text-980d7e1a05 class=cmp-text>

The neuromuscular research team at the Neuroscience Center in Delaware Valley is partnering with the Raphael Center for Neurorestoration at Thomas Jefferson University to develop the NuroSleeve. This wearable device can help children with muscular dystrophy and other conditions that cause arm weakness or paralysis. Learn more about the NuroSleeve trial.

Close-up
Convenient Follow-Up Appointments by Video</h2>\r\n"}} id=text-a675e3f427 class=cmp-text>

Convenient Follow-Up Appointments by Video

We offer follow-up appointments through scheduled, live video visits. You can avoid waiting rooms and save travel time. Ask your doctor if this is an option for your family.</p>\r\n"}} id=text-242499fc71 class=cmp-text>

We offer follow-up appointments through scheduled, live video visits. You can avoid waiting rooms and save travel time. Ask your doctor if this is an option for your family.